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Question:
Unfortunately my Crohn's disease is flaring for the first time in 2 years, so I'm back. I also have a new, nifty problem that is so far undiagnosed. 12 days after having my last baby (a year ago on June 11!) I had an *extensive* deep vein thrombosis from my left vena cava to my left ankle. I had this about 8 years ago too, so on my last 2 pregnancy's I injected heparin 2X daily for the entire preg. and post-partum for 2 months, for prophylaxis to no avail this time I'm afraid. I was in ICU for 2 weeks, had multiple angioplasties, thrombolectomies, chemical thrombolysis via trans-venous catheter mult. times, and 180mm stent insertion. I also have ilial compression syndrome. Now I have pain and atrophy in my left thigh. BTW, my Drs. told me I had to wean the baby due to the meds I was taking (also because I was in ICU and couldn't see him) I am an R.N., and when I got home I did my *own* research, extensively, and viola', all meds I am on do not pass through to breast milk. My son's pedi. is OK with my continued breastfeeding, so I relactated after having him weaned for 3 weeks... Just another example of Drs. knowing *everything*! But I digress (big time!)

Answer: Wow, sorry to hear about all of your problems. I had thrombophlebitis when I was pregnant 28 years ago, and again after knee surgery in 80. And pulmonary emboli twice after the knee surgery (one while anticoagulated on coumadin.) I found that the severe thigh pain diminished gradually. I probably don't need to tell you this, since you are an RN, but I will anyway. Take care of the veins! Graduated compression stockings, and elevation absolutely as much as possible. I neglected mine (young and foolish - did not like the way the stockings looked) and have paid for it dearly. I have had ulcers on that leg for over 8 years. Got osteomyelitis, which has become chronic, because three different doctors that were trying to treat the ulcers failed to adequately treat the infection and it spread to the bone. Anyway, to make a long story short (or maybe a short story long), take very good care of the leg now to avoid big problems later.

 


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